All His Sons

September 2, 2007

Except that for most of his life, he forgot about one of them… This Vanity Fair article by Suzanna Andrews is about Daniel, Arthur Miller’s fourth child, who was born in 1966 with Down Syndrome. Miller had the child institutionalised almost immediately.

The Broadway producer Robert Whitehead, who died in 2002, would tell Martin Gottfried that Miller called him on the day of the birth. Miller was “overjoyed,” Whitehead said, and confided that he and Inge were planning to name the boy “Eugene”—possibly after Eugene O’Neill, whose play Long Day’s Journey into Night, which had won the Pulitzer in 1957, had awed Miller. The next day, however, Miller called Whitehead again and told him the baby “isn’t right.” The doctors had diagnosed the infant with Down syndrome. Born with an extra 21st chromosome, children with Down syndrome are often recognized by their upward-slanted eyes and flattened facial features. They suffer from hypotonia—decreased muscle tone—and mild to moderate retardation. Many are born with heart problems, and in 1966 they were not expected to live past the age of 20.

“Arthur was terribly shaken—he used the term ‘mongoloid,’” Whitehead recalled. He said, “‘I’m going to have to put the baby away.’” A friend of Inge’s recalls visiting her at home, in Roxbury, about a week later. “I was sitting at the bottom of the bed, and Inge was propped up, and my memory is that she was holding the baby and she was very, very unhappy,” she says. “Inge wanted to keep the baby, but Arthur wasn’t going to let her keep him.”

It’s not an easy read. Institutional care in those days was not pretty:
Some children never had any visitors. Their parents put them in Southbury and never saw them again. Other parents, like Inge Morath, were dedicated visitors. “They came like clockwork, every visiting Sunday,” says Richardson, who wonders how many of them were fully aware of the conditions in which their children were living. “If you were a parent who had left your child in that situation, would you ever want to admit that Southbury was like that? How could you live with yourself? You had to tell yourself it was all right.” Inge, however, appears to have seen things more clearly. After a Sunday visit to Southbury, du Plessix Gray recalls, Inge said, “‘You know, I go in there and it’s like a Hieronymus Bosch painting.’ That was the image she gave.”
Today, four decades after Daniel was born, the situation is very different:
Experts say it is difficult to measure how much Daniel had been held back by years of living in an institution. Early-intervention programs, nurturing families, and special-education classes—all of which Daniel missed out on—have contributed to a 15-point rise in the I.Q. scores of Down-syndrome children in the last 30 years, says Stephen Greenspan, a professor of psychiatry and former president of the Academy on Mental Retardation. Today, many higher-functioning Down-syndrome children can read and write; some graduate from high school and even college. Chris Burke, the actor with Down syndrome, who played Corky on the television show Life Goes On, lives in his own apartment in New York and commutes to work. Daniel, by contrast, had to learn basic reading skills. He had to work on his speech, and people say it is still difficult to understand him unless you know him.

Suzanna Andrews wonders about the price that Miller would ultimately have to pay for his decision:

A writer, used to being in control of narratives, Miller excised a central character who didn’t fit the plot of his life as he wanted it to be. Whether he was motivated by shame, selfishness, or fear—or, more likely, all three—Miller’s failure to tackle the truth created a hole in the heart of his story. What that cost him as a writer is hard to say now, but he never wrote anything approaching greatness after Daniel’s birth. One wonders if, in his relationship with Daniel, Miller was sitting on his greatest unwritten play.

After reading the article, I was sure only of one thing: that I would not like to be judgemental about the decision that Arthur Miller made forty years ago. It was 1966, after all. Children born with Down syndrome were generally being put into institutions. But not all. Many remained at home, in the nurturing environment of their families; and one of Daniel’s cousins, also born with Down syndrome, was being cared for at home.
And what could explain Miller’s inexplicable silence, for so many years, about Daniel’s existence?

Read the whole thing. It makes you think.

“Mere ko get out kar diya”

For the true meaning of junoon, meet Laxman Rao, chaiwalla and novelist:

Over 30 years ago when Laxman Rao ran away from his home in Talegaon Dashashar, western Maharashtra, with just Rs. 40 in his pocket, he had little idea of what life had in store for him. In Bhopal where he chose to get off the train, Laxman worked as a labourer for three months before he boarded the train once again and came to Delhi. “The first place I landed in was Birla Mandir and to survive I started cleaning cups and plates at different dhabas. The year was 1975 and thos e were the days when Gulshan Nanda was very famous. He used to write the most amazing stories in Hindi. I was so influenced by his writing that I decided that even I wanted to be Gulshan Nanda.”

“I felt, as I had done only class X, I needed to study further so at day time I worked and by night I would sit and read my books. I passed XI, XII and even did my graduation from Delhi University. Then in 1997, opposite the Suchita Bhawan on Vishnu Digambar Road, I built a mud platform and started selling paan beedi. I did that for 14 years before I started selling tea.”

He finished writing his first book, Nai duniya ki nai kahaniya in 1979. Armed with his manuscript, he enthusiastically made the rounds of publishers. “I went to atleast 10 publishers but no one was interested. One even told me tum paan beedi bechanewale tum kya likogye. Mere ko get out kar diya. So I decided I have come so close to making this book happen, why should I give up. So I bought paper, it was a 128 pages book and I spent Rs. 7,000 to get it published. I priced it at Rs. 7.” He decided he would be the distributor too. Everyday, armed with a bag full of his novels, Laxman made the rounds of schools and colleges on his bicycle.

Why does he do it? Because
“Five years later or after my death, people will say here was a man who struggled and wrote and they will remember my work.”
The whole thing here.

This Month in Mumbai

From assorted emails:

September 7:

Majlis and Max Mueller Bhavan, Mumbai host a panel Discussion on Art and Artists: Practices, Perceptions and Pedagogy
Speakers: Gulammohmmed Sheikh, Ranjit Hoskote, Shivji Panikker, and Suresh Chabria; Chair: Mitra Mukherjee Parikh

7 September 2007, 6.30 pm Max Mueller Bhavan, Kala Ghoda

*****

September 8:

The PEN All-India Centre, Mumbai presents:

THE FLOWERING OF ATTENTION: A presentation on and readings from J Krishnamurti’s teachings

Date: 8 September, 2007 (Saturday)
Time: 6.30 pm
Place: Prithvi House, 1st Floor (Opp. Prithvi Theatre, Janki Kutir, Juhu)
ENTRY FREE

*****
13 September

PEN All-India Centre, Mumbai presents a poetry reading by Hyderabad-based poet Sridala Swami from her debut collection A Reluctant Survivor

Date: 13 September, 2007 (Thursday)
Time: 6.15 pm
Place: Theosophy Hall, 3rd Floor, 40 New Marine Lines, Churchgate, Mumbai.
ENTRY FREE

*****

Roli Books and ITC Grand Central present

Kite’s Eye View
INDIA
Between Earth and Sky

by Nicolas Chorier
with a foreword by Zubin Mehta

7 pm, September 8, 2007 at The Ball Room, ITC Grand Central, Mumbai
(by invitation)

An exhibition of photographs from the book will be on display at the Durbar Hall, Asiatic Society of Mumbai, Town Hall from September 7 to 12, 10:30 am to 6:30 pm.

Jana Gana Mana

True to the raga after which he has been named, our son Desh loves music. Whether we’re listening to Pandit Jasraj or Talat Mahmood, our ten month old feels that he must participate in the song with a most soulful “Aaaaaaaaaaa” and some enthusiastic taalam on the bars of his cot.

One of his favourite CDs is Rehman’s Jana Gana Mana and we have heard it several times already. It’s a lovely album, notably the renderings by Rashid Khan, Shobha Gurtu, Saddiq Khan Langa, and the superb Bhimsen Joshi… I love the way the album brings together some of the different voices, instruments, dialects and accents of the country. And hearing D.K. Pattammal’s voice singing along with her granddaughter Nithyashree brought tears to my eyes.

The album also includes Tagore’s original recitation of the anthem. Deeply moving.

Advice to Our Children

Writing about Nazim Hikmat in The Hindu Literary Review, Ravi Vyas quotes from the great Turkish poet’s “Advice to Our Children”:

Be naughty, that’s all right.

Climb up sheer walls,

Up towering trees.

Like an old captain let your hands direct

The course of your bicycle….

You must know how to build your own paradise on this black soil.

With your geology textbook

you must silence the man who teaches you

that creation began with Adam.

You must recognise

the importance of the Earth,

you must believe the Earth is eternal

Distinguish not between your mother

and your mother Earth.

You must love it

as much you love her.

Also read Hikmat’s poems “On Living” and “Things I Didn’t Know I Loved”.